Comments on: Nephrotic Syndrome - a personal experience

By: Irfan

Irfan — Sun, 04 Oct 2009 08:44:17 +0000

My son Mohd. Kaif is six and half years old suffering from Nephrotic syndrome since February 10th 2009. My nephrologists at the begging prescribed Prednisolone 45mg every day for two momths, One month alternate day and then slowly tapered in three months. June 10th we stopped the medicine and one month till July 10th he was well. One day he had a cough and cold then slowly he developed to relapse protein +,++,+++ in India. I approached the paediatric nephrologists in Delhi India, he advised me that he had a relapse once again. First three days he prescribed 30mg prednisolone (in three days protein became nil) then he advised to alternate day and slowly tapered in three months. I had notice that when he is taking 10mg prednisolone alternate day then protein is nil, but when we are giving him 5 mg his protein is traced one day and second day nil. This is happening since last two weeks. His weight is 21kgs and currently I am giving him 5mg prednisolone alternate day.

Sir can you please advice me your opinion, I and my wife very upset with this and do not want to continue prednisolone any further.

Regards,

Irfan

By: Nalina

Nalina — Tue, 14 Apr 2009 12:40:57 +0000

My frustration was the same as yours. My daughter was then turning 4, she had all the symptoms as your son. For two weeks, her paediatrician could not determine the problem. In the end, it was hospitalization. Very high blood cholesterol, very low albumin level, very much of unnecessary suffering! It’a almost a year now. She has had a few relapses since, and it breaks my heart whenever she has to go back on prednisone. I wanted to try homeopathy, but don’t dare since it is not really clnically proven. we tried some herbal remedy from Austria and the next morning she had a relapse. Now I’m just waiting and hoping it will go off by itself before having to start prednisone again. Any advice will be most appreciated.

By: otto

otto — Wed, 07 Jan 2009 03:10:32 +0000

My brother contracted Nephrotic syndrome when he was about 6 he is now 18. He manages it with diet mostly. He avoids salt and processed foods. He also drinks a cup of Georges Aloe Vera Juice every couple days. My parents learned of this from a doctor who had used it. They wanted to do clinical trials but the manufacturer did not want to release their formula as was required. From what the doctor told them this worked well for nearly everyone who took it. My brother has done quite well with Georges Aloe Vera. It has to be this brand there is something different about it. It tastes like water so it is easy to drink unlike some others. With this and astragalus root he has had to take prednisone for a less than a year total in the 12 years he has had this disease. He only takes prednisone when he has a relapse until he is healthy again. Usually the relapse is due to stress. Hope this helps

By: tannaz

tannaz — Wed, 12 Nov 2008 15:38:58 +0000

Hello Justine,
in response to your question regarding a natural remedy to keep the protein levels down, unfortunately there is not one particular supplement that I could suggest. however, since nephrotic syndrome is autoimmune based, the foccus should be to keep the body in a balanced state. I pay particular attention to my son’s diet minimizing his salt and sugar intake, boosting his immune system with particular herbal supplements and vitamins (including vitamin D) in the winter. I would suggest looking into food sensitivities which are different form allergies. keep up his diet as when he is on prednisone (low sodium, low carb, low sugar, low fat). My foccus with my son is to maintain his health as long as possible with supportive natural medicine (herbals, vitamins, hoemopathics). cenrtain physiological changes in their growth can be responsible for a relapse i.e. growing in molars. other aggrevating factors to consider are vaccination, my son had a relapse the night he had his DPTP booster shot. I am NOT advising you to avoid vaccines, however they are listed as a causative factor for N.S. and I have seen a direct link in my son’s case. There are some homeopathics and herbals which can be used once some protein loss is detected. however your child needs to be under suppervision of a licenced Naturopathic Doctor so that the treatment can be individualized to their need. It is not definitive and so far I have not been able to find an equivalent treatment to prednisone. I have been able to delay the start of prednisone but it all depends on what the cause is and why the body is reacting this way, when there is an inflammatory process in the body or aggravation due to allergies, sensitivities, emotional factors or enviromental factors then a relapse is likely. I hope this comment has been beneficial for you, if you have any other comments please post it and I will get back to you.

By: justine

justine — Tue, 11 Nov 2008 00:38:33 +0000

Have you heard of any natural remedies that will help keep the protein level down? I have a child recently diagnosed with NS and prednisone is a very strong drug and difficult to stay off in many cases.

Thank you.

By: Cesar B. aka the Mover

Cesar B. aka the Mover — Mon, 10 Nov 2008 22:07:19 +0000

I’ve heard some goody things about this blog. Remember to balance the pics with the text tho but over all very nice post, keep up the good work

By: Cesar B. aka the Mover

Cesar B. aka the Mover — Wed, 05 Nov 2008 01:59:44 +0000

I really liked your blog. Very useful information, I read it detail, also book-marked it and will be back in the future to read some more of your interesting posts ! keep up the good work.

By: breakup_helper

breakup_helper — Sun, 02 Nov 2008 05:15:58 +0000

Interesting stuff…Thanks. Keep it up!

By: Eugene

Eugene — Mon, 20 Oct 2008 15:05:48 +0000

I am seaching for some idea to write in my blog… somehow come to your blog. best of luck. Eugene

By: Hillary Martin

Hillary Martin — Sun, 19 Oct 2008 09:10:50 +0000

Lots of content, but worth the read. Keep it coming.